Why develop a Global Psoriasis Atlas?
Epidemiological research has the potential to add to our understanding of the prevalence and incidence of psoriasis and its comorbid diseases, as well their psychosocial and societal impact. However, previous studies on the epidemiology of psoriasis have lacked standardisation in case-definition and methodology. This thereby limits the value of geographic comparisons, and provides very limited data on temporal comparisons of the prevalence of this serious, chronic noncommunicable skin disease.
International Psoriasis Council
The mission of the GPA is to provide the common benchmark on the complete burden of psoriasis in all countries and regions throughout the world. The GPA will leverage existing data from publications and registries; where gaps are identified additional studies will be commissioned. The GPA is a longterm project that seeks to drive continuous improvement in the understanding of psoriasis and to uncover how it affects both the individual and society at large. Whilst the first edition of the GPA will focus on the incidence and prevalence of psoriasis, future additions will be expanded to include access to treatment, comorbidities and cost to society.
The Global Psoriasis Atlas (GPA) is a joint project of the ILDS (International League of Dermatological Societies) , IFPA (International Federation of Psoriasis Associations ) and IPC (International Psoriasis Council).
The aim is to document and use global and regional health care data for psoriasis in order to identify the global burden of psoriasis.
“Atlas” means a database on health information related to different geographic zones, including facts on epidemiology, health care structures, processes and outcomes.
GPA intends to provide accurate health data for decision makers, stakeholders, health carers and patients worldwide.
GPA is based on the scientific methods of epidemiology and health services research.
GPA is funded by pooled grants from dermatological societies, foundations and industry.
GPA has been founded according to the WHO resolution from May 24th 2014 on psoriasis being a relevant non-communicable disease
International Psoriasis Council
• Professor Mattias Augustin
• Professor Christopher Griffiths
• Professor Luigi Naldi
• Professor …
The GPA is the leading epidemiological web-based resource on psoriasis globally; thus informing research, policy and heath care provision for the disease worldwide.
How can you support the GPA?
Establishing a sustainable high quality GPA requires the support of industry, organisations with relevant datasets and collaboration across regions and countries.
If you or your organisation is interested in contributing to the development of the GPA via monetary or in-kind contributions, or wish to undertake research relevant to the GPA, please contact the GPA Programme Manager, Rebekah Swan.
Despite the contribution of existing published epidemiological studies to the understanding of the occurrence of psoriasis, further international research is needed to better define the global burden of the disease. For this reason, under the remit of the Grand Challenges in Global Skin Health, the International League of Dermatological Societies (ILDS), the International Federation of Psoriasis Associations (IFPA) and the International Psoriasis Council (IPC) are establishing an international research programme.
The University of Manchester, in partnership with other research organisations, will derive estimates of the global epidemiology of psoriasis (Phase1) and determine core criteria for the conduct of epidemiological studies on psoriasis (Phase 2) that can subsequently be used in future research and to update the Global Psoriasis Atlas (GPA). The ILDS will facilitate financial and contractual governance of the GPA.
Scope of the Global Psoriasis Atlas
The GPA will maximise the value of epidemiological research into psoriasis by facilitating international collaboration and greater standardisation in study methodology whilst meeting the highest scientific standards for epidemiological data collection and estimation. The scope of this project includes scientific publications including: a methodology paper and; studies conducted to form a foundation for development of the GPA.
The two phases are designed to allow comparisons of the incidence and prevalence of psoriasis between populations in different countries, and create a first time global ‘picture’ of the disease burden. Through two work streams we will:
- Conduct an extensive systematic review of currently available literature with the desired outcome of a publication(s) in suitable high impact journal(s).
- Determine a methodology to serve the framework for compiling the GPA, thus providing a Standard Operating Procedure to execute the GPA under a “hub and spoke” model.